I filed for disability but got denied. I am 16 and I have Fibromyalgia.?!
Question: I cant afford my medicine and I can barely get through school any advice to help me get disablity? Its hard enough not to relate to anyone cause ive never met anyone my age that has it. I just cant stand to be miserable anymore.
Answers: I cant afford my medicine and I can barely get through school any advice to help me get disablity? Its hard enough not to relate to anyone cause ive never met anyone my age that has it. I just cant stand to be miserable anymore.
Hi--
I also have Fibromyalgia, so I can relate to your suffering. Social Security Disability benefits are based on a person's working years prior to becoming disabled. At your age, there is no work-history, and therefore, no benefits. Did your parents have a Health Insurance Policy that offered coverage for a disabled child? That is a different scenario.
What I would suggest is for you to contact the National Fibromyalgia Association, 2121 Towne Centre Place, Suite 300, Anaheim, CA 92806, or http://www.fmaware.org, which I believe has a "Contact Us" link.
Also, do as much reading on Fibromyalgia as you can from libraries and book stores. Some books have excellent resource-lists in them. Your best way to deal with the varying symptoms is to understand what aggravates them, so you can learn to NOT do those things, to the best of your ability. A web search will also find local Fibromyalgia Support Groups that you may want to explore. I haven't personally done that yet.
As for medication costs, ask your prescribing doctors for PPA applications. They are applications that you can fill out and send to the manufacturer of each drug that you find helpful to take. Each drug manufacturer has a program in which people who can't afford the drugs they make can apply to them to get them free directly from them. Your parent(s) and doctor(s) can team up to make that happen. Another program that works similarly is at www.NeedyMeds.com.
You may need to fight for what you need at a time when you least feel like it. It will be helpful if you can share your experiences with the people around you whom you think would be willing to make your daily efforts a little easier. But try not to be a regular "kvetch" (complainer).
Whatever you do, don't give up! And if you'd like to write me back, you may.
Are you living alone? If not, your parents need to provide it. You can only file it when you are an adult.
i'm 42 with osteoarthritis of the lower spine and both hips and a broken vertebrae and degenerative disc disease. and got denied for the past 5 years so you are what like a minute old?
you need to go to the website for Fibromyalgia and see what they suggest for a healthy way to eat, how much sleep do you need and stay completely away from carbonated beverages and caffeine of any kind....
your diet can help maintain your symptoms. check into these websites and find a support group
more people than you think have the same thing so dont think you are the lone ranger and remember there is always someone out there who is worse off than you are
dont believe me,,,,,volunteer at your hospital
YOU NEED TO SEE A DOCTOR THAT CAN HELP YOU BESIDES GIVING YOU MEDICATIONS. YOU NEED TO EXERCISE. yOUR PARENTS SHOULD BE SUPPORTING YOU ALSO! WHY WOULD ANYONE GIVE YOU DISABILITY WHEN YOU HAVENT EARNED A LIVING AND ARE STILL UNDER YOUR PARENTS CARE.
If you can't get disability based on fibromyalgia, make the system work for you, and apply for it based on depression and anxiety.
But I would join Lymenet if you have 'fibromyalgia' - fibro is a bogus diagnosis that doctors give all females with fatigue, joint pain, and other vague symptoms that they are unable to find reasons for. Practically everybody on Lymenet was told they had fibro, when they really had Lyme and multiple coinfections that simply defied traditional tests.
When to Suspect Lyme:
http://www.angelfire.com/biz/romarkaraok...
Lymenet:
http://flash.lymenet.org/ubb/ultimatebb....
Don't expect your current docs to diagnose this though. Again, join Lymenet.
Disabled people Disability Living Allowance (DLA)
Disability Living Allowance - sometimes referred to as DLA - is a tax-free benefit for children and adults who need help with personal care or have walking difficulties because they are physically or mentally disabled.
The information in this section is a guide only. The office dealing with your claim can answer any questions you may have about claiming and receiving Disability Living Allowance.
European Court of Justice ruling
On 18 October 2007 the European Court of Justice gave a judgment which deals with whether Disability Living Allowance (care component only), Attendance Allowance and Carer's Allowance should be paid to people who move from within the UK to live in another country within the European Economic Area.
It is not yet clear what this will mean for recipients of the affected benefits. We expect to provide full details on eligibility criteria by 5 April 2008. The first payments could be made to eligible customers shortly afterwards.
Who can get Disability Living Allowance?
You may get Disability Living Allowance if:
you have a physical or mental disability, or both
your disability is severe enough for you to need help caring for yourself or you have walking difficulties, or both
you are under 65 when you claim
not understanding why u have to pay for medicine as you are 16 and get your prescriptions for free up until you are 19 if you stay in education.
And to kat you can get disability living allowance, its a tax-free allowance for children and adults and it is not based on whether you earn or not as my brother has been receiving it since he was a child along with attendence allowance (brother has cerebral palsy has trouble with walking, looking after himself and now is spending alot of time in a wheelchair).
You can't get it at your age. Your parents are responsible for you right now. Do you know what fibromyalgia is. I had it explain to me because my wife has it. If you look at say a piece of steak, and see the white grit like stuff running through it. that hardens and causes what you have. Exercises is the best medicine, just don't lay around and let it take you over. Asteroid pill may help, just don't make it a habit to stay on them. They will cause you to eat and the weight will increase. Just take the smallest doze possible, 0.5 mg twice a day for a week, then go off them for a couple weeks. If they helped go back on them for a week Etc. The best exercise in in a warm swimming pool and exercise your legs, That helped my wife more than anything. Just keep up the exercising. Good luck to you.
I have had Fibro since I was 5-diagnosed about 20 years later--
It is NOT bogus
Steriods will NOT help-as there is no imflammation-
some exercise SHOULD help-but it is not a miracle cure-
no one combination of treatments works the same with everyone-
Did you try Social Security Disability or SSI (supplemental social security) are there any medicaid programs that will at least pay for your meds
are you emancipated or still a dependent