Why did my daughter lose her vision in her left eye?!

Why did my daughter lose her vision in her left eye?

My daughter is 8 yrs old and weve battled a vision problem for four years. We have seen several optometrists, and all of them has had a different opinion on her vision.. (muscular, astigmatism, etc..) Weve done the patch, she's worn glasses etc...
Nothing seemed to help. In fact her vision has worsened.a. She was able to see periphial (sp?) but just in the last year she has complained of complete loss of vision..
My husband's coworker and friend recommended a reputable optometrist and so we made the appt. and he referred my daughter to an Opthamologist. The opthamologist was astounded to the fact that my daughter never was referred to get an MRI done for ruling out any tumor compressing her optic nerve..
We had the MRI done at the hospital here in our area, and the report stated that 2 large cysts were causing mass compression (pineal, and arachnoid). Was then referred to Neurologist, same thing was stated,, and referred to Neuro-surgeon but he said she just had chiari malformation

3 weeks ago
but mentioned nothing of her optic nerve, also when i mentioned my concern about the cysts the doctor just kind of shrugged it off as if he wasnt too concerned with it...
My question is, if the cysts are compressing her optic nerve then why did she lose her vision? Ive been trying to get in touch with the doctor to express my concern, but have had no return calls,, very frustrating..

3 weeks ago
I am at a loss it seems, the neurosurgeon my daughter saw is sopposed to be one of the best in the nation, should i just take his word for it or still seek a out a second opinion,, Her father and I are somewhat disappointed with his bedside manner and also got the impression that he didnt bother to look over her report, because he questioned us as to whether she needed glasses and in the report states that there is loss of vision.. I guess I just expected more from this neurosurgeon (being one of the best).. Should I seek another opinion??

I am praying for your daughter and asking Jesus to heal her.

My advice (limited) is to stop seeing Optometrists, and go see an Opthamologist (which I know you have done). I would see an Opthamologist who only deals with children..a Pediatric Opthamologist. An Optomitrist in n-o-t a medical doctor, and only deals with fitting glasses and contacts. Any thing deeper than that is o-n-l-y hanled by Opthamologists, who are medical doctors.

For now, it seems like your Opthamologist, the MRI, and your Neurologist detected the problem. As you stated, I would ask your Neurosurgeon to explain why the cysts are not going to be removed, and what are the effects of doing and not doing that? If he says, "oh, it's just chiari malformation?" ...ask him what it is, how are your options to fix it, and will your daughter be able to see again.

I went on webmd.com to look up chiari malformation...and from what I could decipher, it seemed to describe it as a brain defect. I'm not sure what that means...but take to the Neurosurgeon, and also, tell the Neurologist what your Neurosurgeon stated. I'm sure the Neurologist will be disappointed, but he won't say anything, as the Neurosurgeon is a collegue, and they don't typically bad mouth each other in this field. Then ask your Neurosurgeon for the name of another respected Neurosurgeon that can give you a second opinion. At the very least, you need to get a second opinion from a highly regarded neurosurgeon (ask your co-worker and Opthamologist for a name to...research..pick, and get a second opinion).

You and your daughter are in my prayers. God Bless!
Mike