Neurofibromatosis..physic... th!


Question: i am doing a paper on NF and i need to find some things that physical therapy can do for it.. but cannot find any sites really giving any information. i know that with NF there can be a loss of balance, so i could write about techniques to improve that but does anyone know any other forms of PT that could be used? or if you have NF have you gone to PT?


Answers: i am doing a paper on NF and i need to find some things that physical therapy can do for it.. but cannot find any sites really giving any information. i know that with NF there can be a loss of balance, so i could write about techniques to improve that but does anyone know any other forms of PT that could be used? or if you have NF have you gone to PT?

Probably because it really doesn't work too well, for most people anyways.

I have NF type one and never have gone through PT, I used to take (but not becasue of the NF, because I wanted to) Tae Kwon Do, which was a little hard for me to do, I wasn't as good as the others in the class and I do see a NF doctor and he's never said anything about PT really doing much improvement.

Sorry if that doesn't help much, but there just all different degrees of NF. Some people have large masses on their legs, which continue to grow, so even doing PT might not even help, as the NF slowly get worse for the person. Doctors are still trying to find medicine that will stop the growing or even try to shrink the tumor.





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