Is there a good support group for people who have primary carnitine deficiency?!

Question: i was just told i have this rare muscle desease and i would like to talk with others who have the same.

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Answers: i was just told i have this rare muscle desease and i would like to talk with others who have the same.

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Is this Fabry Disease ?

Anyway here are some links to support groups for carnitine deficiency support.

Hope they help.

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