For one of my relatives. She has fibrous displasia, what is the best treatment a!
Question:
For one of my relatives. She has fibrous displasia, what is the best treatment and where in the UK?
After they taken multiple coronal cuts the Para nasal sinuses without I.V. contrast, revealed that:
1-The left superior orbital ridge appears distended with evidence of hyperostosis which extends to left compartment of the frontal sinus, otherwise the rest scanned paranasal sinuses are clear.
2-Both osteomeatal complexes are patent.
3-Mild hypertrophy of the left middle and inferior nasal turbinates.
4-Minimal rights ward deviated nasal septum
.
Answers:
Difficult to answer without more info, such as:
- how old is she?
- what are her symptoms?
- does she have any associated conditions?
The description of the CT (or MRI?) doesn't sound too serious - if it isn't causing any ugly deformity, it probably doesn't need any treatment at all. It's a benign condition, and often stops growing in adulthood.
On the other hand, if she's still a child it may continue to grow. Surgery is occasionally needed, although the fibrous dysplasia can grow back after surgery. There are craniofacial surgery centres in Great Ormond Street, Oxford, Birmingham and probably a few other centres; or a maxillofacial surgeon may be able to do the job (if any job is needed).
Occasionally fibrous dysplasia is associated with hormonal conditions, such as hyperthyroidism, early puberty or (particularly in girls) McCune-Albright syndrome. Has she been checked out for these?